SEPTEMBER/OCTOBER 2024 NEWSLETTER |
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2024 SARC Semiannual Meeting as part of CTOS |
SARC’s Semiannual Meeting as part of CTOS will be held 3:30-5:30 pm PST on November 13, 2024 at the Manchester Grand Hyatt in San Diego. Sessions will include: - Overviews on SARC-sponsored clinical trials and other initiatives, including our pan-sarcoma virtual tumor board, sarcoma subtypes research initiatives, and the patient-facing Sarcoma Centers Registry.
- Sessions on:
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“Platform trials in malignant peripheral nerve sheath tumors”, encompassing preclinical and clinical platforms, including a panel discussion with Q&A.
- “Removing roadblocks to GIST cure”, shining light on opportunities and controversies emerging from the October 2024 GISTT Summit in Germany (see below), and
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“Ewing sarcoma cell plasticity creates CAF-like states that remodel the microenvironment”, illustrating the “mechanistic bent” of the SASS conference now held annually in Bethesda, MD, USA (see below).
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2nd Annual SASS Conference |
With 160 scientists, clinical investigators, and patient advocates participating, the second annual SASS (Strategic Advances in Sarcoma Science) conference took place Sept. 16-18, 2024 in Bethesda, Maryland, USA. SASS is co-facilitated by NCI and SARC, focusing on basic science and translational/clinical challenges and distinguished by emphasizing continuity and breakout workgroup deliverables. Click to learn more about SASS 2024.
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| GISTT Summit Held on October 16th-18th |
The GISTT Summit took place Oct. 16-18, 2024 in Essen, Germany, attended by more than 100 clinical investigators, scientists, and patient advocates from 17 countries. This inaugural conference resulted from a collaboration between the leadership of FORTRESS (Forum for Translational Research in Sarcomas) and SASS (Strategic Advances in Sarcoma Science), with SARC helping to facilitate. Learn more about the GISTT Summit.
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| SARC Leadership Marks Rare Cancer Day |
SARC leadership helped mark Rare Cancer Day on September 30, 2024, on both a local and national level. Steven Young, SARC President & CEO, and SARC Board of Directors member John Hopper, spoke at an event in Greenwich, CT, highlighting the importance of clinical trials to advance treatment progress for sarcoma and all rare cancers. Read more about Rare Cancer Day.
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Join Sarcoma Centers Registry Today! |
The Sarcoma Centers Registry (SCR) launched by SARC in April 2024 and (as of October 2024) more than 80 sarcoma programs (adult and/or pediatric) have applied and been approved for listing on this new patient-facing resource. Join the SCR today |
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RESEARCH ADVOCACY COUNCIL |
RAC Members Work to Raise Awareness |
Josh Lombardi, son of Research Advocacy Council member, Val Stevenson, was recently featured in his local newspaper, the Vancouver Sun, sharing his perspective as a young adult with Desmoplastic Small Round Cell Tumor. Learn more about Josh's story.
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| Aadi Bioscience Reception at CTOS |
Aadi Bioscience and SARC encourages CTOS attendees to attend the Structural and Functional Omics session. CTOS attendees are also invited to Aadi's reception on Wednesday, November 13, 2024, between 7:00-10:00 PM at Lumi. Click to learn more and register.
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In this SARC Talk episode, Dr. Angela Hong, a radiation oncologist at Sydney Medical School, University of Sydney, discusses international clinical trials, the structure of Australia’s cooperative groups in sarcoma, and her participation in the SARC032 clinical trial. Listen to the podcast.
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This episode of SARC Talk features Dr. Candace Haddox from Dana Farber Cancer Institute. Dr. Haddox discusses developing a career in sarcoma and the importance of mentors. She also discusses her newest clinical trial, SARC044 for patients with gastrointestinal stromal tumor (GIST). Listen to the podcast.
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This episode of SARC Talk showcases Dr. Aerang Kim, MD, from Children’s National Hospital. Dr. Kim offers her valuable insights on clinical trial research, collaboration, Department of Defense funding, and the importance of mentoring. Listen to the podcast.
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Liposarcoma Support Network Launched |
The Liposarcoma Support Network (LSN) was established in September 2024 as a program of The Life Raft Group, a patient advocacy organization committed to enhancing the survival and quality of life for people living with rare diseases. Find support today.
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| SARC Leadership Support SFA Fundraiser |
The Stand Up to Sarcoma gala by the Sarcoma Foundation of America (SFA) gala is its annual fundraiser. SARC and SFA work in parallel and together to help advance scientific research to improve outcomes for patients. Pictured above are Brandi Felser, SFA CEO, and Steven Young, SARC President & CEO at SFA’s Sept. 19, 2024 gala in NYC. |
| Emmanuel College features SARC |
SARC Project Coordinator, Caralynn Hampson, was recently featured in an article by Emmanuel College about going from cancer patient to advocate. Highlighting Caralynn's work as a student researcher and with SARC, this article raises awareness about the obstacles that sarcoma research faces. Read the article.
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