Annie Achee

Annie Achee, has been the President of the National Leiomyosarcoma Foundation (NLMSF) since 2015. The NLMSF was founded in 2001 by a caregiver honoring his wife. Annie is also a caregiver, honoring her spouse through service to the LMS Community as well as the general sarcoma community through having co-founded the Sarcoma Coalition with Rein In Sarcoma, which launched in 2017, in collaboration with the principal founder Denise Reinke. Annie is a member of the Coalition Steering Committee. Annie and her husband Dr. Mitch Achee, also an LMS survivor, have dedicated themselves to supporting the sarcoma community, assisting patients and families all over the world, coordinating patient programs throughout the USA at sarcoma centers of excellence annually, along with monthly virtual programs.

The National Leiomyosarcoma Foundation’s mission and purpose is to support the patient and family community through education about the disease, support for care and treatment of the disease, and annual research funding of LMS-Specific projects. In 2018 The International LMS Research Roundtable was founded, and launched in 2019 by the NLMSF, with a subsequent partnership with Sarcoma Patients EuroNet (SPAEN) in 2020 for global research initiatives within the Roundtable. Currently, there are 128 researchers committed to supporting the Roundtable initiative.

The NLMSF is involved in several research organizations, including the FDA CDRH Patient Engagement Program, ECOG-AGRIN Sarcoma Workgroup; Cardiotoxicity workgroup; Patient Advocacy Council, PCORI Patient Ambassador Program, road Institute’s Rare Cancer Patient Advocacy Panel with Dr. Jesse Boehm, and the Count Me In Project with Dr. Corrie Painter, International Cancer Advocacy Network, AACR, ASCO, CTOS, as well as being a member of SARC since 2018 and having co-funded SARC research projects.