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The SARC Talk Patient Experience podcast highlights one of oncology’s most overlooked communities: adolescents and young adults with sarcoma. Hosted by Daphne Edgren, a Master of Public Health candidate at the Harvard T.H. Chan School of Public Health and Senior Medical Writer in sarcoma clinical research, Rise to Face the Sun brings the voices of adolescent and young adult sarcoma patients to the forefront.
Each episode follows a guest through their sarcoma journey from diagnosis and treatment to survivorship, identity, and life on the other side, capturing the wisdom, resilience, and hard-won perspective that only lived experience can offer. Guests share what they wish they had known, what helped them through the hardest moments, and what they want others facing a sarcoma diagnosis to hear. Whether you are newly diagnosed, in the thick of treatment, or years into survivorship, these conversations are a reminder that you are not alone.
Most cancers can feel like a death sentence — unless you’re Eli Galloway. Facing synovial sarcoma for the second time, Eli shares an intimate journey from misdiagnosis to recurrence, navigating a rare disease with strength, humor, and unwavering hope. His story uncovers the hidden realities of living with cancer young and the relentless work of staying ahead of disease in an era of new therapies.
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This episode brings Sabina Ghebremedhin into conversation about her daughter, Natasha Allen, who shook the sarcoma community with her unmatched radiance. Across five years of experiencing synovial sarcoma, Natasha built an extraordinary community of more than 220,000 followers on TikTok and Instagram with work that was funny, candid, and refused the tired scripts handed to young people with cancer.
Most cancer journeys take unexpected turns, and for McKenna Avery, they led to a discovery that changed everything: a rare sarcoma that nearly went unnoticed. Her story is a powerful testament to intuition, personalized care, and how unconventional healing practices can complement traditional treatment to create a truly holistic approach.
In this inspiring episode, Daphne Edgren chats with the vibrant Julie-Anne Jean-Pierre, who shares her triumphant journey through sarcoma, a rare cancer. Julie-Anne opens up about her initial challenges in getting diagnosed and how she turned adversity into a story of resilience and hope. With a positive outlook and the unwavering support of friends and family, she navigated her treatment with courage and determination.
The truth about young adults with rare sarcomas — it’s not what you think. Ever wonder what it’s like to face a cancer that almost nobody knows about?Josh was thriving — just starting his career as a dentist — when suddenly, his world turned upside down. Diagnosed with a rare, aggressive sarcoma at just 33, he’s been fighting for more than two years with relentless chemo, surgeries, and radiation.
Most people don’t realize how different and isolating a cancer diagnosis can be for young adults. Combining honesty, humor, and profound insight, Alison Silberman shares her heartfelt journey of caring for her brother Bobby, a 24-year-old diagnosed with stage four Ewing sarcoma. Her story reveals the raw realities of navigating rare cancers in young adulthood and the unexpected ways it shapes advocacy, community, and hope.
When you hear “rare cancer,” what comes to mind? Brandi Benson’s extraordinary story of surviving Ewing sarcoma, deployed in Iraq, and turning her pain into profound purpose will challenge everything you think you know about resilience, hope, and fighting against the odds. Brandi was just 23 and fresh out of basic training when a lump on her leg changed her life forever.