Patient Stories

Please note: This new Sarcoma Centers Registry map and listing will replace our previous list of sarcoma centers. Access past content here. Over two dozen sarcoma centers have submitted details for the Sarcoma Centers Registry out of nearly 90 known centers. Additionally, several other centers are either in the process of submitting or are being actively encouraged to do so. While some sarcoma programs have been approved and listed, they have yet to complete the detailed program information required for the registry. During this transitional phase, we are committed to serving the sarcoma community by continuing to provide access to the previous SARC Centers list, which includes nearly 90 sarcoma centers. However, please note that this list will not feature the detailed program information that will be included in the broader Sarcoma Centers Registry. As we continue to build this new database we invite all sarcoma centers to apply and register.

The Sarcoma Centers Registry is a database of sarcoma institutions, centers, and practices worldwide. Centers can be filtered by pediatric and adult care and each center has a summary page with detailed information including useful telephone numbers.

All centers included in the Registry meet objective, qualifying criteria and share our commitment to sarcoma research through collaboration. Centers indicated as SARC Consortium Members have a collaborative research agreement with SARC. About consortium members.

October 22, 2024

Research Advocacy Council Logo

RAC Members Work to Raise Awareness

RAC member Val Stevenson’s son, Josh Lombardi, was recently featured in his local newspaper, the Vancouver Sun, sharing his perspective as a young adult with Desmoplastic Small Round Cell Tumor.

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February 2, 2023

Photo of Caralynn Hampson and Dr. Lara Davis

From A Survivor’s Perspective

My name is Caralynn Hampson and I am SARC’s Research and Development Intern. I’m also a Ewing’s sarcoma survivor and future biostatistician. Thank you for supporting SARC.

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