October 22, 2024 RAC Members Work to Raise Awareness RAC member Val Stevenson’s son, Josh Lombardi, was recently featured in his local newspaper, the Vancouver Sun, sharing his perspective as a young adult with Desmoplastic Small Round Cell Tumor. Read more
LRG Announces The Liposarcoma Support Network (LSN) The Liposarcoma Support Network (LSN) was established in September 2024 as a program of The Life Raft Group (LRG), a patient advocacy organization committed to enhancing the survival and quality of life for people living with rare diseases. Read more
August 20, 2024 Sarcoma Centers Registry Continues to Grow SARC’s Sarcoma Centers Registry is well underway with 77 institutions and counting on the map! Read more
Research Advocacy Council News and Upcoming Events The Research Advocacy Council will have their quarterly meeting on September 9, 2024. Read more
SARC 044 Open for Enrollment SARC’s newest clinical trial, SARC044, is now open for enrollment! This trial aims to enroll patients with GIST who have previously progressed on sunitinib. Read more
SMTB Excited to Announce DDLPS Webcast Event with PeerView SARC’s SMTB and PeerView are collaborating on an upcoming educational webcast on dedifferentiated liposarcoma (DDLPS) on Friday, October 11, 2024 from 12 pm-1 pm CDT. Read more
June 17, 2024 Research Advocacy Council (RAC) Updates The Research Advocacy Council is working on several projects behind the scenes, including involvement in the newest SARC clinical trial, SARC044. Read more
June 13, 2024 SARC037 Progress Announced at ASCO 2024 Dr. Patrick Grohar presented the SARC037 findings at ASCO 2024. The results suggest that EWS::FLI1 is a target for Ewing sarcoma and the combination of trabectedin/irinotecan is active in treatment-refractory Ewing sarcoma patients. Read more
SARC Sarcoma Centers Registry Accepting Applications We are pleased to announce that SARC’s new, global Sarcoma Centers Registry, is live. We are still requesting that interested sarcoma centers submit a brief application form. Read more
SARC Multidisciplinary Tumor Board (SMTB) Updates SARC Multidisciplinary Tumor Board meets the second Friday of every month at 1:00 p.m. ET. Each case that has been presented has provided captivating dialogue. Click to learn more about our recent cases. Read more