Angel Parry

As we continue to build this new database, we invite all sarcoma centers to apply and register.

The Sarcoma Centers Registry is a directory of sarcoma institutions, centers, and practices worldwide. Centers can be filtered by pediatric and adult care, and each center has a summary page with self-reported, detailed information, including useful contact information and a Google map link.

All centers included in the Registry have voluntarily submitted data that meets specific, objective criteria. These centers are united in their commitment to advancing sarcoma research through collaboration.  Centers indicated as SARC Consortium Members have additionally executed a master collaboration research agreement with SARC. About consortium members.

Sarcoma Centers Registry

November 7, 2024

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Join the Sarcoma Centers Registry Today

The Sarcoma Centers Registry (SCR) launched by SARC in April 2024 and (as of October 2024) more than 80 sarcoma programs (adult and/or pediatric) have applied and been approved for listing on this new patient-facing resource.

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October 22, 2024

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RAC Members Work to Raise Awareness

RAC member Val Stevenson’s son, Josh Lombardi, was recently featured in his local newspaper, the Vancouver Sun, sharing his perspective as a young adult with Desmoplastic Small Round Cell Tumor.

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LRG Announces The Liposarcoma Support Network (LSN)

The Liposarcoma Support Network (LSN) was established in September 2024 as a program of The Life Raft Group (LRG), a patient advocacy organization committed to enhancing the survival and quality of life for people living with rare diseases. 

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C Haddox at ASCO

SARC 044 Open for Enrollment

SARC’s newest clinical trial, SARC044, is now open for enrollment! This trial aims to enroll patients with GIST who have previously progressed on sunitinib.

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