Desmoid Tumor Research Foundation

Please note: This new Sarcoma Centers Registry map and listing will replace our previous list of sarcoma centers. Access past content here. Over two dozen sarcoma centers have submitted details for the Sarcoma Centers Registry out of nearly 90 known centers. Additionally, several other centers are either in the process of submitting or are being actively encouraged to do so. While some sarcoma programs have been approved and listed, they have yet to complete the detailed program information required for the registry. During this transitional phase, we are committed to serving the sarcoma community by continuing to provide access to the previous SARC Centers list, which includes nearly 90 sarcoma centers. However, please note that this list will not feature the detailed program information that will be included in the broader Sarcoma Centers Registry. As we continue to build this new database we invite all sarcoma centers to apply and register.

The Sarcoma Centers Registry is a database of sarcoma institutions, centers, and practices worldwide. Centers can be filtered by pediatric and adult care and each center has a summary page with detailed information including useful telephone numbers.

All centers included in the Registry meet objective, qualifying criteria and share our commitment to sarcoma research through collaboration. Centers indicated as SARC Consortium Members have a collaborative research agreement with SARC. About consortium members.

Sarcoma Centers Registry

April 3, 2021

Rare Disease Day logo

Sarcoma at NIH 2021 Rare Disease Day

Sarcoma was highlighted during 2021 Rare Disease Day at the National Institute for Health (NIH). Dr. Francis Collins, NIH Director noted “We’ve made real progress in these 10 years, first …

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