Desmoid Tumor Research Foundation

As we continue to build this new database, we invite all sarcoma centers to apply and register.

The Sarcoma Centers Registry is a directory of sarcoma institutions, centers, and practices worldwide. Centers can be filtered by pediatric and adult care, and each center has a summary page with self-reported, detailed information, including useful contact information and a Google map link.

All centers included in the Registry have voluntarily submitted data that meets specific, objective criteria. These centers are united in their commitment to advancing sarcoma research through collaboration.  Centers indicated as SARC Consortium Members have additionally executed a master collaboration research agreement with SARC. About consortium members.

Sarcoma Centers Registry

April 3, 2021

Rare Disease Day logo

Sarcoma at NIH 2021 Rare Disease Day

Sarcoma was highlighted during 2021 Rare Disease Day at the National Institute for Health (NIH). Dr. Francis Collins, NIH Director noted “We’ve made real progress in these 10 years, first …

Read more
Back to top