LRG Announces The Liposarcoma Support Network (LSN)

The Liposarcoma Support Network (LSN) was established in September 2024 as a program of The Life Raft Group (LRG), a patient advocacy organization committed to enhancing the survival and quality of life for people living with rare diseases. 

Developed initially as an advocacy group for patients with gastrointestinal stromal tumor (GIST) in 2002, in recent years, the LRG has expanded to additional rare diseases including giant cell tumor of the bone (GCT) and tenosynovial giant cell tumor (TGCT).  As a result of this experience mentoring underserved rare disease communities, The Life Raft Group is now engaging with the liposarcoma community to produce dedicated, educational materials & events (Liposarcoma Days of Learning), address advocacy issues, implement a mentor program and support groups, and provide Virtual Tumor Boards and an expansive Patient Registry.